Formerly known as the Mason Update, we return to share the rollercoaster we call life with a SuperMase page. Mason and our family have begun the battle against Aplastic Anemia.

Sunday, April 13, 2014

Overwhelmed

Our friends said it best in their email to SuperMase Event ticket purchasers.

“Words cannot express the gratitude we have for everyone that came out to support our SuperMase and the Morash Family.”


The SuperMase event on Tuesday, April 8th, was a smashing success - and overwhelming, to say the least. We were in awe when we walked in the door. It was amazing. We had been kept in the dark about much of the event - and, so it was exciting for us to see everything, and everyone. The best part of the night - was that we could feel absolute happiness and joy in the room.  And, we saw a sea of SuperMase gear - thanks to Brooke's creativity. More than a few people have emailed me, and commented on the HUGE amount of support we have, and commented on how awesome our friends are. If you check out our favorite photographer Roon Brown’s photos (below) – you’ll be hard pressed to find a sad face.  We are more than blessed. There were big smiles, laughter everywhere, and even strangers became instant friends over the course of the evening. People traveled from afar to make it to the SuperMase event, many of which we haven't seen in a very long time. Some, we've never even met. It was very humbling, and everyone's presence was appreciated. I felt like I only spent but one minute with everyone - the event flew by so quickly, and there were SO MANY people to thank.
 

Our friends Shanna and Alison worked HARD to put this event together - and there was a long list of volunteers that assisted with the event itself. Shanna and Ali have been planning the SuperMase event since the end of December. Mason was diagnosed and while he was undergoing treatment they were already running with their plan. And, we are more than thankful. Every day I think about it, and I am not sure how someone ever really repays another for such efforts. Or, how you can express thanks for something like this. Not only did they take charge of the event – they have helped us in a thousand other ways.  They listen to me talk about counts and ANC til all hours, and hug me when I cry. Or, they cry with me. And, their husbands, have been put to work, and put up with all of us the whole way through. I know their families are so proud of them for all that they have done, I hope that they know - I'm not sure what we would do without them.

To Roon Brown for capturing the evening – thank you. We are so appreciative that you have given us photos to remember the event, and have always given us awesome family pics to hang on the wall. You can purchase Roon’s photos (with proceeds going to SuperMase) here:
http://roonbrown.shootproof.com/SuperMase (Password: SuperMase)

To Ryon Ansaldo of Ryon Lee Media – Thank you for carrying that BIG camera around all night - we can’t wait to see the montage!!!  For those interested in purchasing a copy (proceeds also going to SuperMase) please send an email to: ryon@ryonleemedia.com.

To Max Kauffman and Haven Dunn, as well as the entire crew at D Street Bar and Grill – WOW. You. Are. Awesome. Your venue was perfect. Thanks for letting SuperMase take over for a few hours and for your tremendous efforts. To Nikki Girsch and Aaron Linekin for hooking up D Street with some beer and booze - thank you. If you attended, please give D Street some kudos – here: http://www.yelp.com/biz/d-street-bar-and-grill-encinitas.


Dinner was provided for more than 200 people at the SuperMase event. Thanks to El Nopalito, our favorite local Mexican joint, and yummy Rimels  - for delivering delicious eats to the party - as well as Julie Robbins for dessert!

To the 200 plus people that bought tickets to SuperMase, and to our event planners. Thank you.  Next post - we're going to give all of the volunteers and donors the recognition they deserve, tell you about some of the fantastic raffle and auction items, and --- hopefully have the final total tallied up. Our friends are enjoying some time with their families - following the chaos of planning such an awesome party. And, once they've recuperated from SuperMase - we should have a list to share.

Last but not least, we also hope to have some seriously good news about Mason. His labs on Thursday took a turn, for the better. And, we are holding our breathe hoping that the road ahead is going to be one with far less speedbumps.

Sunday, March 30, 2014

Follow the Blood

On Thursday, Mason had a tough day at the Clinic.  He was in need of two transfusions - doubling up on platelets and red blood for the day.  Fortunately, he's gone three months having transfusions without any issues. Thursday, he had an allergic reaction to both transfusions. For he and Dave, it was a very long day.

Mason is fine, and we'll return to Rady's tomorrow to see how much of the blood and platelets he received stuck.  And, from now on, when he receives any transfusions - they will pre-medicate him with Benadryl and other necessary drugs. 

I'm a member of a very informative Facebook Page called Band of Mother's Against Aplastic Anemia.  I follow a number of children across the world, battling the same disease.  Last week, I stumbled upon a fantastic video from City of Hope, about blood donations. A great new piece of education to share with our site visitors. It helps us understand what happens, after you donate your blood. And, at the end, when it says "someone who really needs it," well - that's Mason. 




To Mason's cousins Tyler and Emma - who raised $350 at their lemonade stand to battle Aplastic Anemia, and our friend Andy - who's office kicked butt at the Carlsbad 5K rocking SuperMase shirts - we send you big hugs!

Wednesday, March 26, 2014

The Truth

The bulk of this post has been sitting in my drafts – for weeks. I think, I’m finally ready to make it public.

As I mentioned in the beginning of March, our MUST have a bone marrow transplant plan – is temporarily on hold. We kinda need a match for that to happen – and well, labs are changing. We thought for SURE, we'd already be in a hospital room, helping Mason charge through a transplant. I think we may have gotten a little ahead of ourselves.  Now, we realize, that even if he were to have a transplant – it wouldn’t be until at least the Fall, if ever.

As of today – there is not a match. Dave and I have been holding onto much “match” information, as I've been somewhat unwilling to share it with the world. And, it's completely selfish. But, we needed to absorb this together, and with labs changing so often, I needed to realize that nothing related to Aplastic Anemia is fast. And, quite honestly – I have moments when I just don't want to answer questions about it. At all.  The question about whether we have found a match – has a simple answer. Just 'no.' New questions that will come up – if we divulge more details – will surely be more detailed, and more often. So – I’ve opted, with Dave’s support, to keep it quiet.

The truth.

When we began the process of seeking a bone marrow transplant – doctors pulled a “preliminary’ list of potential donors from the registry. Very high level preliminary results. This was done while we were at our City of Hope appointment with Mason, and we were told that there were 29 possible matches that day. That – which seemed like exciting news to us, turned out to be “ok” per the nurse onsite. A little saddening to hear, but, I guess I did appreciate that she didn't sugar coat anything. 29 just isn't a big number when it comes to the number of people in the world, and the registry – obviously.

Dave and I joke about it. It’s totally our fault that locating a match is difficult, because he and I have such weird DNA. Mason can legitimately blame his parents for this one.

Of those 29 preliminary results – NONE were a 10/10 match – the A+ rating of a match. The highest was a 9/10.  We remained confident, but, that number still isn’t the BEST of the BEST. And, well.  We want the BEST if Mason needs a transplant.

The next step – was for City of Hope to work with Be the Match, to narrow down those 29 possibilities, seeking whether any of these donors were transplant possibilities.  On February 6th, they sent messages to three people on the planet – requesting that they respond and acknowledge the inquiry, and move forward with further testing to narrow typing. I say the planet – because I  know that they are in this world, but that they are all located outside of the United States.

Our transplant coordinator has advised me that the only information that they will divulge to possible donors is Mason's age, his sex, and the disease he has been diagnosed with. A potential donor will remain in the dark as much as we do, and the entire process is handled with strict confidentiality. 

As of 2/26/14, 20 days following the initial attempt to contact them, there were not any responses as of yet. The time frame for a response could be longer than one might think, but either way, I was a bit disappointed, but, also remained cognizant that they are were each a 9/10, but not a 10/10.

As of 3/5/14, we received an update that a total of 5 individuals had been contacted for preliminary testing. Three had responded by that point, I imagine the initial three, and they were "released because they were poor matches." Two more, remained outstanding.

As of 3/20/14, we received an update that one of the remaining outstanding individuals, was also not a suitable match. One still remains outstanding. 

There were no other potential matches to be requested.

So, we know that many of you have added your names to the registry over the past few months. And, you've inspired others to join. You've held drives, and rock your SuperMase gear, and spread the word.  Please don't stop.  Each day forward, the more people that are added - means that more people can be considered for Mason, and the rest of the world's match seekers. It matters. A lot. 

Donating blood, and platelets - also matters. It almost matters MORE. Our child depends on blood and platelet donations to live. And, he has lived because of the donation of blood products, since December 16, 2013. When you sit in the Rady's clinic and look around - you'll see that many children depend on them.

Over the next months, more searches will be pulled. And, I'll continue to call our transplant coordinator, for more updates. The Bone Marrow Transplant coordinators receive reports frequently when someone enters the system that could be a potential match for Mason – so, for now – we encourage EVERYONE to register, and continue to spread the word about Be the Match. 
Mason’s counts continue to improve – which is very positive. It appears as though his system continues to respond to the ATG treatment, and he remains without any bugs.  With ANC’s just over 700 and WBC’s of 1.5 – he is far better than he once was.  His counts are improving and we've relaxed a bit on things - but still remain cautious and protective. Our life is starting to feel somewhat normal these days - after a brutal couple months. Ethan has gone to a birthday party, Dave and I attended an awesome wedding, we've had friends over to play with Mason and BBQ (turned mini-SuperMase party) and Dave and I have gotten out more. Mason's even riding his skateboard and scooter on high platelet days.  We have 'kinda-sorta'  normal moments. But, still SO NOT NORMAL. Mason still can't go to school, can't eat a stupid grape or strawberry - and remains transfusion dependent. But, in the grand scheme of things - it could be a heck of a lot worse, don't you think? Our next step will be to determine if he will receive a second round of ATG. Our hopes are that we can kick transfusions to the curb (along with Aplastic Anemia), and keep increasing counts.  So. That’s the truth.

Thank you for your continued support and love. See you at the SuperMase Fundraiser in less than 2 weeks!  If you don't have your tickets yet - get them today!

SuperMase Fundraiser tickets are ON SALE HERE!

Saturday, March 8, 2014

SuperMase Fundraiser Tickets are ON SALE!

Please join us to support Mason's battle against Aplastic Anemia! 


April 8th, 2014
6pm-9pm
D Street Bar and Grill - Encinitas, California
 
Each ticket includes dinner and the opportunity to win LOTS of awesome raffles and amazing silent auction items. 
And tons of fun.
Proceeds from the event will go directly to the the Benefit Account for Mason Morash.
 
Thanks to hosts Shanna Johnson & Alison Jones for all of their coordination efforts!
Now. Go. Get. Your. Tickets!!!

Friday, March 7, 2014

"We'd All be Worse Without A Nurse"

Cheers to more good labs this week!

Mason’s White Blood Cells (WBCs) have finally hit 1.0 and were at 1.1 yesterday! In addition, his fighter cells, those ANC’s, went above 300 on Tuesday, and 400 on Thursday. When his ANC’s hit 500, he will not be considered “neutropenic” any longer. That diet that he is on will be a little less strict – and we hope to be on our way to a special meal or two. We decided that when we hit 750, we will be confident enough to celebrate that milestone with some food cooked in a restaurant kitchen. But, seated at an outside table of course.

Fallbrook VFW’s Fundraiser last Saturday was a huge success. Ethan and I joined my family in Falbrook and were impressed at the turnout. Thanks to all that donated their time, joined the Be the Match Registry and put funds towards Mason’s Benefit Account. It is sincerely our hope that we conquer this, and that funds are paid forward to the charities that have helped us battle Aplastic Anemia.  Rady’s, Ronald McDonald Charities and Be the Match are just a few at the top of our list.  For now, we are extremely appreciative for the world’s generosity, and hope that as we head towards a transplant, and until Dave’s work life (and mine) becomes normal again, we will be ok.  Here’s a link to the article of thanks posted in the Fallbrook Village News from my folks.

What’s next on the Agenda for Mason?  On Thursday, he got his levels topped off with both a blood and platelet transfusion.  He will surely enjoy the California sunshine this weekend with a full tank.  Mason will continue to receive blood and platelets as he needs them. The increase in his WBC’s could be a sign that the ATG treatment from January could be working positively. But, right now Dave and I have no idea what that means.  If your first thoughts are like ours – you are probably thinking – well, if this is working, then – he might not need a transplant, right? 

Who knows. Maybe? Maybe not. 

Aplastic Anemia seems to be a hurry up and wait disease.  But, the important thing to remember, is that it is one thing not to be transfusion dependent, but it’s another thing to get back to good levels and have the quality of life Mason deserves. Either way – we’re at least improving, so THANK GOD.  As of today, we have not located a bone marrow match, so, a transplant is not an option quite yet.  More on that, soon.

Want to know about some happy stuff?

Each year, a large Credit Union for Kids Wine Auction is held. If you didn't already know, I work for the fantastic Mission Federal Credit Union.  Mission Fed's Senior Management Team has banded together to create an amazing SuperMase item that will be auctioned live at the event on March 14th. Proceeds from the item will benefit local Children’s Hospitals - like Rady's and CHLA.  Cool, huh?  Dave and I are honored that they have decided to do this in Mason’s honor - and are extremely appreciative. Check out the auction feature on their site. 

My dear friend Heidi - and social media guru from Mission Fed - well, she posted about sharing the gift of time and helped to further spread the word of our cause to the masses. 

Mason’s been working hard with his tutor twice a week, and keeping up with 2nd Grade. Last week, his assignment was to write a report about a Hero.  Any hero. Anywhere. He decided to write about his favorite night nurse Amanda, and favorite day nurse, Liz, from Rady’s.

Nurses are Heroes
“We’d all be worse without a nurse.” – Author Unknown
Amanda and Liza are nurses who make a difference in our lives by helping people. Amanda and Liza give everybody medicine when they need it. They set up IV’s and they give children dissolvable pills. Nurses also cheer people up. They bring children toys, jello and they bring big smiles. Amanda and Liz work so hard. They stay up all night to help people. They work 12 hours a day or night.  Nurses are heroes who help people every day. Amanda and Liz are the best!
Doesn't that JUST melt your heart? It makes me proud.

Another something I’d like to share, is a video of Mason’s favorite Child Life Specialist Andie, that was played on our local news, about her job at Rady’s.  She is remarkable, and the work she and other others do at Rady's, is indescribable.  (And, yes. She is really that gorgeous in person every day. And, no boys, you can not have her phone number.)

Special thanks to D Street Bar and Grill in Encinitas – they have graciously given up their location for the SuperMase Fundraiser Auction in April. Tickets will be released TOMORROW! Check back for details! 

And, finally - special thanks to Jason Jones for his super donation this past week. Someday, I’ll tell the world about it. For now. Just know that words will never do it justice.  

Tuesday, February 25, 2014

Small Celebrations

It’s been two weeks that our family has lived together – in the same house – without any funky colds, since Mason’s diagnosis.  Forgive me for no updates. We’ve been pretending to be normal.  Well, we’ve never been normal, ever – so, we’re just pretending to be our old selves.

Over the previous holiday weekend, we turned off the television and electronics and got some fresh air.  We hit the beach for a picnic – stumbled upon friends, and ended up there for an entire afternoon.  It was so NICE.  Nice to enjoy So Cal sunshine in February. Nice to picnic. Nice to enjoy the company of friends. Nice for the kids to play. Just NICE. This past weekend, we had visits from my folks, a fun breakfast play date with the Johnson kids and dinner with family.  Yesterday, while I was at work – Mason’s clinic visit was short – so the boys went to the park for a picnic.  We had an impromptu visit with the Jones - and crashed their house for dinner. Just plain - NICE.

We were fairly certain that with the holiday causing a delayed visit to the clinic last week, that Mason would be exhausted – and showing signs of needing platelets. With just minor bleeding Monday – and a normal energy level, he headed with Dave to the clinic on Tuesday.  It, along with his visit Thursday, were small ‘wins’ in our house.  We’ve been told not to be excited, and not to jump around about it – but for us, last Tuesday and Thursday labs were finally – GOOD.  Yesterday, they were also positive!

Last Tuesday, what was expected to be a Platelet and Red Blood (RBC) transfusion day – was ONLY Platelets.  Mason didn’t need RBC’s til Thursday. Awesome.
Another nice result?  Improved labs.

If you’ve been following Mason’s story from the beginning, you’ll remember when I posted about Mason’s labs in December.

Normal WBC – 4.0 to 12.0             12/26 - .2
Normal RBC – 4.0 to 5.3                 12/26 - 2.65
Normal Platelets – 140-440         12/26 – 15
ANC – High risk is ,500, and low risk is more than 1000.  Mason was at 12.  That is pretty much a big fat goose egg.  0.

Last week – WBC’s were hovering around .7.   Today, they came in at .9. Mason will continue to require transfusions for RBC’s and platelets, on average a transfusion or two per week. But, more positive results were that his ANC’s (those super fighters!) went up to 266 last week. The week prior – he was at 48. An improvement – and way more than 12. Nothing to jump around about quite yet – but something positive. Awesome right? Wondering why? Well – so are we. And, we’re confused about it. But, we’ll take it anyway and figure it out.  Today Mason had to make an unplanned visit to the clinic for platelets - following a long night. His mouth bleeds quite often when he needs platelets, and he spent three hours spitting out clots in the middle of the night. It may sound like a setback, but he's received his transfusion today - and is back up and running.

Over the holiday weekend, Dave shaved Mason’s head – and I trimmed up his lip and brows a bit. It was quite a comedy if you ask me. I told him at one point that he had better not to move or he would lose an eyebrow. Dangerous.

We all continue to be very emotional – in one way or another. The meds, and likely limitations placed on Mason, make him extremely emotional. Tears are frequent, and honestly – although he has always been a negotiator, flat out refuses things these days. It’s more than challenging. He’s still feeling sorry for himself.  That makes me very, very upset. I don’t feel sorry for us. I don’t want anyone to feel sorry for us.  It’s lame.  We’re going to beat this thing. There is no doubt that it SUCKS. But, the amount of support we are receiving is mind-blowing. Support and encouragement are better than pity. And listening when we reach out to vent, is priceless. Just for the record. No pity parties. Just party-parties, please.

One of the Morash kids that is back to his old self - is Ethan. He’s quite happy – all the time, making friends with his new nanny, and getting lots of trips to the park. Of all the time we’ve been together these past two weeks – understanding that I have been at work most of it – I haven’t seen a serious meltdown. And, when we drop him off at our parents’ house – there are far less tears, and no questions about whether we are actually going to come back and pick him up. He is attached to his Teenage Mutant Ninja Turtles and loving life.


Now. With my posts few and far between – there is much to post about when it comes to the publicity and support that has been shown.  Dave’s cousins back east – have rallied and done much to get the word about Bone Marrow donation out. A drive was held on February 19th – at Muhlenberg College.  Thanks Morash crew! The same day, thanks to Shelley Baker at Be The Match, there was a Bone Marrow drive at Southwestern College, with Mason’s SuperMase banner and face displayed proudly. The next day, she was back and had a drive featuring SuperMase at the school that Dave and I met and graduated from – CSU San Marcos.   My brother and his girlfriend, and my cousins Marie and Bill – all showed up to claim us, and support the event. Thank you.

Last week, I received a message that Mason’s face was on the front page of The Village News, in Fallbrook, California, letting the community know about the VFW Post 1924’s dinner fundraiser for Mason. Thanks to the entire VFW post for their support of our family and amazing fundraising efforts. Thanks to Tori Morrison at 92009 Magazine and 92011 Magazine for the article on Mason as well. We are so thankful for the word to be spread about our search for a bone marrow match.  And, for the record – his fantastic photo, and all of the professional photos you see – are thanks to Roon Brown Photography. Hire her. She is AMAZING, and I’m extra thankful for our session this past year. 

Next. I received a care package from my aunt and uncle in Bakersfield – supplying us with much needed face masks and other items. Included were proceeds from a most generous event in January – for Mason’s benefit account. Thanks to all that participated, and donated, and I’m sorry I don’t have all of your names!  I do however, have one - Audrey Kenny. She donated proceeds from sales of some most fab jewelry, at the event. You can view her site here: www.inspired.jewelkade.com. Jewelry. Fundraising.  Awesome.  Super Duper thanks.

More. I swear, it doesn’t stop. We are very, very lucky.  Also included in that package, thanks to a friend of my family, was a signed Oakland A’s hat, jersey, and personal letter from Kurt Suzuki.  Kurt Clutch. 
Mason was impressed.  Dave and I were wide-eyed. It was very touching.  And, very – very cool. 

SuperMase shirts are back on sale again for a limited time. Right now, if I estimate correctly – more than 250 shirts have been sold. It’s officially a fashion statement.

Thanks to our parents as usual for everything they do for us, thanks to all of our friends - for EVERYTHING. Thanks to those who continue to send cards/gifts – being home these past weeks, Mason has enjoyed opening some new toys.  To Brooke for the cool SuperMan-Mase gear that has arrived for the boys, they continue to rock it. For the dinner deliveries from the Jones, the Valentine surprises from Mason’s class for he and Ethan, and wine for us. To the LCH PTA for their BIG bag of goodies from the Book Fair. For Fern, who helped us escape for sushi.  To my husband, who I know didn’t aspire to be a babysitter/doctor and taxi-driver – I sincerely appreciate all that you do. I know you’d rather be doing more loans than babysitting.  I took Mason to the clinic today - and it's very clear that the Morash boys are very popular with the nurses.  They all complimented them both - and for me, it was nice to see where Dave and Mase spend their days.

To the police officer who gave me a ticket last week, and the crappy endodontist who did my root canal – I’m not sending you thanks. You’re not my favorite people right now. But, we’re taking wins this week, so I’m just ignoring you both. To everyone else. Cheers.

Monday, February 10, 2014

Where Have We Been?


An update is due – and I know the Supermase details have been quiet on both my Facebook page and here.  It’s been a long, long week. Dave needs a BIG, STRONG drink.  Perhaps two or three.

Following the successful LCH drive last week, thinking we had gotten past a very difficult week prior, we dove deeper into chaos and experienced more issues. Mason hit some speed bumps with his counts that weren’t expected.  He remained living in the safe house with Dave, and has become pretty emotional, from what I understand over the past week. Mason hasn’t had a real routine for the past two weeks, and, along with medicine, and just the entire situation, it has begun to take its toll on him. He experienced some more concerns with his mouth, and enough bleeding to warrant an unscheduled visit to Rady’s for a transfusion of platelets.  We’ve also discovered, he has another loose tooth.  Who knew those darn teeth could be such a problem. What Dave expected would be an easy trip to clinic Thursday morning, turned into an all-day affair, because Mason needed another RBC transfusion.  I’m sure it’s like a kick to the gut each time they say that to Dave; at least it feels that way to me when he sends me a text update.  All the while, Dave and Mason had been living in the safe house at Dave’s house. Bunking with Dave’s parents and super-invading their space. And Ethan was with me – on antibiotics from his recent cold, and hopefully – we will find out in the next day or so, that the blister in his ear is gone and nothing else is needed.

Friday – after finding out I needed a root canal (yahoo!), I hit a wall. Or, maybe a truck hit me and I just don’t remember it happening. I went down with a nasty bug – and spent the entire weekend in bed while both kids lived with Dave in the safehouse.(Now SUPER DUPER invading their space.)  With some help from doctors, including my cousin, I am finally semi-functioning again today. But, I have been banished from our house – as the boys have left the safehouse to come home.  I lysoled the heck out of it, wiped down everything I could, opened every window, and headed to my parents to sleep, and try to get rid of this bug I have, for good. So, that’s where I live right now. I hope I can go home soon, after almost 3 weeks of someone fighting some sort of bug – and return to a healthy house. Minus this whole Aplastic Anemia thing, of course.  We still haven’t lived as a family in so long, that I can’t really remember.

Following our trip to CHLA last week, we came home with more questions. We had questions about everything from transplant success rates, to accommodations – and have not yet settled on a hospital. As Dave forwards off a few final questions to doctors, we imagine we should make a decision in the next week or so. We got our hands on some interesting genetic information, and hopefully when we have time, we’ll be able to do some research with it. Either way, it appears as though Ethan might be an alien from another planet. Or switched at birth. (Not really, but he and his brother appear to be completely different in their typing. NOT EVEN CLOSE. I am sure that when they started pulling up his genetic info for the match process, that they sadly eliminated him very quickly.)

Bright news from last week – Ethan’s new nanny started – and there were zero departure tears when I left him. He spent the day with a new face, and someone who could focus ONLY on him for a change – instead of our crazy family trying to focus on a thousand things.

Today, Mason went in for another checkup – and needed another dose of platelets. It’s seems as though he is on a 5-6 day plan for them, each time it becomes harder to tell. I ordered a little hair trimmer, and am hoping to attack his mustache soon, and do my best to keep him looking like his cute 7 year old self, and not picture a 17 year old mustache.  So many pictures of kids with Aplastic Anemia show kids with bushy eyebrows, and excess hair. He’s one of them. And, thanks to a kind stranger who has talked to me about her child’s experiences with the disease, I’m no longer afraid to attack that mustache and his brows head on.

So much has happened offline in the last week. I feel like our family is hurting from being apart for so long. Mason is afraid of me and my germs. He’s also pulling the sympathy card about his disease to get out of some things – which will stop REAL FAST.  We missed a long list of birthdays and events for friends, and although it shouldn’t matter, it is still a bummer. Dave needs a serious vacation following these last few weeks.  He has saved the day over, and over and over. And, our family continues to take at least one of us in at all times to help. It’s crazy.

I have a long list of thank you notes to write, they have piled up in my inbox, and my in fact, be buried at this point. But, one I don’t want to miss, is for the Fallbrook VFW Post 1924. They have already donated funds toward Mason’s benefit account, and continue with the help of the masses – to sell tickets for a $500 gift certificate. At $5 per raffle ticket, it is estimated that those tickets will generate almost $5K.  It is awesome, and very much appreciated.

To all of you that are sporting your SuperMase gear, and sending us photos – thank you. Your snapshots deliver big smiles along with them. Don’t forget to hashtag your pics with #supermase and #supermaserules, so we can share a bulk of them later. And, if you didn’t order your shirts yet – they are back on sale temporarily!

Thanks for your continued prayers, texts, cards and gifts. Thanks for the random hugs that come our way from people, and notes just to tell us that you are following Mason’s story and praying for him every day. We are thankful. Thanks to our best friends for listening, delivering as much normalcy to our life as you can, and laughter.  Hopefully – more healthy updates sooner than later – and news about a match. Cheers!